Paper in Clinical Child and Family Psychology Review
  • Wong, I., Hawes, D., Clarke, S., Kohn, M., Dar-Nimrod, I. (2018). Perceptions of ADHD Among Diagnosed Children and Their Parents: A Systematic Review Using the Common-Sense Model of Illness Representations. Clinical Child and Family Psychology Review, 21, 57-93.

    Research on children and parents’ experiences of ADHD has grown in recent years, attracting attention to their subjective perception of ADHD as a disorder. Theoreti- cal accounts of illness perception suggest that it is multi- dimensional, consisting of at least ve core constructs (see the common-sense model of illness representations or CSM: Leventhal et al., in: Rachman (ed) Medical psychology, Per- gamon, New York, vol 2, pp 7–30, 1980, in: Baum, Taylor, Singer (eds) Handbook of psychology and health: social psychological aspects of health, Earlbaum, Hillsdale, vol 4, pp 219–252, 1984). We suggest that the application of CSM in children/adolescents with ADHD and their parents may play an important role in understanding their coping behavior, treatment adherence, and emotional well-being. A systematic search identi ed 101 eligible studies that investi- gated the perception of ADHD among diagnosed children/ adolescents and their parents. In general, these studies sup- port the existence of the multiple facets of illness represen- tations proposed by the CSM in both diagnosed youngsters and parents indicating substantial variability among both parents and youngsters on each of these facets. The compre- hensive assessment of the representations of ADHD indi- cates imbalance attention to the di erent representations of ADHD in the literature; disproportional research attention has been paid to the perceived e ectiveness of treatment (i.e., treatment control dimension) compared to other ill- ness representations (e.g., timeline, consequence, and coher- ence), despite research showing their relevance to treatment adherence among other implications. The review identi es the limitation of existing relevant research, needed foci for future studies, speci c testable hypotheses, and potential clinical implications of the multifaceted representations of ADHD among youngsters and carers alike.