Development and evaluation of a tool to communicate risk to women at risk of developing breast cancer
This project aimed (i) to document current practice in risk communication to women from high-risk breast cancer families, attending familial cancer services, (ii) to develop a communication aid to assist women and geneticists/genetic counsellors to enhance risk communication and (iii) to evaluate the impact of the aid on patient outcomes. 193 audiotapes of genetic counseling sessions were analysed using a quantitative coding system, and linguistic discourse analysis. The tool was developed by an expert panel and piloted in 30 women. It has now been produced by the Genetic Education Service of NSW for distribution to all states.

Funding: University of Sydney Cancer Fund